UK Lymphedema Information: Lymphoedema Latest News - lymphoedema uk, lymphedema information, primary lymphedema, secondary lymphodema, lymphedema support, lymphedema cure, lymphoedema swelling, support group

lymphoedema uk, lymphedema information, primary lymphedema, secondary lymphodema, lymphedema support, lymphedema cure, lymphoedema swelling, support groupWhether you have been newly diagnosed, or a Lymphedema sufferer for many years, we sincerely hope that you will find this site a sanctuary that you can visit to locate information and meet with others in a similar position.

lymphoedema uk, lymphedema information, primary lymphedema, secondary lymphodema, lymphedema support, lymphedema cure, lymphoedema swelling, support group

Lymphoedema is a condition which may affect anyone, at any time. However, it occurs with greater frequency in females. It is often distressing, can be debilitating, and is often also painful, showing itself as swelling of the limbs and body. The most common form of lymphedema is in a limb, but it can affect any part of the body or internal organs. At the end of the 20th century, it is far more common than is accepted by the medical profession. Lymphedema can occur at any time, once the lymphatics are damaged. Sometimes, it can start immediately and lasts for life; the oedema may occur for a while then disappear, and may or may not re-occur; or it may appear years after the event in which the lymphatics are damaged, and can be triggered by a seemingly trivial event, such as sunburn, carrying heavy weights or a long flight. Primary Lymphoedema is usually determined from birth and is often due to the under-development of the lymphatic system - usually too few lymphatics, but there may also be cases where the lymph vessels be adequate in number, but are very dilated and do not pump properly. It can develop at any stage of life, but is most likely to occur at adolescence (known as lymphoedema praecox). It is less likely to start later in life (lymphoedema tarda). Primary lymphoedema usually worsens quite slowly. Secondary Lymphoedema occurs where the lymphatic system becomes impaired following surgery and/or radiotherapy (as in cancer treatment) or as a result of infection, severe injury, burns or trauma. It may worsen quite rapidly.

lymphoedema uk, lymphedema information, primary lymphedema, secondary lymphodema, lymphedema support, lymphedema cure, lymphoedema swelling, support group

Unfortunately, there is a general lack of medical knowledge and expertise in giving an early diagnosis and correct referral for treatment. Too often, doctors will claim that it is a trivial condition, which a person has to live with. In fact, Lymphoedema may often have an immense impact on a person's quality of life. Someone with Lymphedema will usually feel any of the following symptoms: Feeling of tightness and heaviness in the limb, which can result in a difficulty of movement; A gradual thickening of the skin on the affected limb. Lymph may also leak through the skin as the condition worsens; Deep aching pains or shooting pains up the limb; Aching buttocks (leg lymphoedema) or back of the shoulder (arm lymphoedema); Pins and needles in the limb; A feeling of tightness or tenderness in the elbow or back of the knee; Pains in the joints (e.g. elbow, knee and ankle), similar to arthritis, and may be diagnosed as this; Tenderness in the groin of the affected leg; "Blown-up" abdomen if a leg is affected or in "lymphoedema-all-over"; The limb or affected areas are warmer than other parts - if it becomes red, this suggests an infection which must be treated immediately; An intolerance to heat, especially in the affected limb (climatic, saunas, baths); Clothes or shoes do not fit properly. Fatigue often sets in. A person with the condition may have to adapt to an altered or more limited daily lifestyle, sometimes with a reduced working capability. Daily self-management of lymphoedema also requires a certain self-discipline.

lymphoedema uk, lymphedema information, primary lymphedema, secondary lymphodema, lymphedema support, lymphedema cure, lymphoedema swelling, support group





		Latest News A full list of all our news articles is available to view by clicking here. August 2002 An presentation describing a research project being undertaken by Professor Christine Moffatt is trying, through her research, to establish a national framework for the provision of lymphoedema services. The project looks is an epidemiology study to investigate the problem of Lymphoedema in an urban population, and this presentation was given to the East Kent Lymphoedema Support Group in August 2002. To read the full text of this presentation, please click here. November 2001 Glen Brice, a Research Nurse, Dept of Cardiological Sciences from St. Georges Hospital Medical School, London, presented a discussion to the East Kent Lymphoedema Support Group on genetics research into Primary Lymphoedema. Glen has kindly agreed his presentation can be exclusively reproduced on this web site, for which we are extremely grateful. To read the full text of this presentation "The Inheritance of Primary Lymphedema", please click here.